Building a Care Team

In this course, you will hear from 11 professionals who work at the Norman Fixel Institute for Neurological Diseases at University of Florida, a Parkinson's Foundation Center of Excellence.

Each professional will address their role in helping people with Parkinson's, the care partner, and the questions you may want to ask when you meet them. While this course cannot cover every specialist who may provide care for your loved one with Parkinson's, we highlight many providers who can be helpful for you and your loved one throughout the Parkinson's journey.
 

 

Syllabus

 

What does it mean to build a team?
Information Page

Who is your Loved one's Primary Parkinson's Care Provider?
Survey

Meet the Experts: Primary Parkinson's Care Providers
Information Page

How Primary Parkinson's Care Providers Help your Loved One
Video, 4 Minutes

How Primary Parkinson's Care Providers help you
Video, 2 Minutes

Questions to ask the primary Parkinson's care provider
Video, 6 Minutes

Questions to consider
Downloadable Resource

Medical Appointment Planning Worksheet
Downloadable Resource

Your Experience with Clinic Staff focused on patient, care partner, and clinic support
Survey

Meet the Experts: Patient, Care Partner and Clinic Support
Information Page

How clinic staff focused on patient, care partner, and clinic support help your loved one
Video, 6 Minutes

How clinic staff focused on patient, care partner, and clinic support help you
Video, 6 Minutes

Finding a Mental Health Counselor
Information Page

Questions to ask clinic staff focused on patient, care partner and clinic support
Video, 4 Minutes

Questions to consider
Downloadable Resource

Meet the Experts: Rehabilitation Providers
Information Page

How rehabilitation providers help your loved one
Video, 2 Minutes

How rehabilitation providers help you
Video, 4 Minutes

Questions to ask rehabilitation providers
Video, 3 Minutes

Questions to consider
Downloadable Resource

Your next Rehabilitation appointment
Survey

Meet the Experts: Beyond the Clinic
Information Page

How Neuropsychologists and Psychiatrists help your loved one
Video, 4 Minutes

Similarities and Differences
Information Page

How Neuropsychologists and Psychiatrists help you
Video, 2 Minutes

Questions to ask Neuropsychologists and Psychiatrists
Video, 5 Minutes

Questions to consider
Downloadable Resource

Complementary Care Providers
Optional Videos

 

BONUS SECTION: Atypical Parkinson's

What is Atypical Parkinson's
Information Page

Primary Care for Atypical Parkinson's
Video, 13 Minutes

Parkinson's disease dementia vs. Dementia with Lewy Bodies
Information Page

Resources for Atypical Parkinsonism
Information Page

  

 

The Building a Care Team Course is brought to you, in part, by the support of Acorda Therapeutics.

Target Audience

This course introduces concepts that will be most helpful for those newer to the Parkinson’s community, however more seasoned care partners may benefit from participation as well.

Learning Objectives

Our hope is that care partners who take this course will:

  1. Understand the specialists who provide Parkinson’s disease care.
  2. Learn more about Parkinson’s disease.
  3. Feel more confident as you build your loved one’s care team.
Course summary
Course opens: 
06/21/2023
Course expires: 
12/31/2025
Rating: 
0

In this course, you will hear from 12 professionals who work at the Norman Fixel Institute for Neurological Diseases at University of Florida, a Parkinson's Foundation Center of Excellence

Primary Parkinson's Care Providers:  

  • Movement Disorders Neurologist Irene Malaty, MD 

  • Advanced Practice Registered Nurse Pam Zeilman, APRN 

Patient, Care Partner, and Clinic Support:  

  • Center Coordinator Amanda Fessenden 

  • Licensed Practical Nurse Tamara Crittenden-Jones, LPN 

  • Clinical Case Manager Jana Unislawski, BA 

  • Volunteer Social Worker Arlene D’Alli, MSW, LCSW 

Rehabilitation Providers: 

  • Physical Therapist Joshua Cooper, DPT, PT  

  • Occupational Therapist Heather Simpson, OTD, OTR/L 

  • Speech Language Pathologist Nicole Herndon, MS, CCC-SLP, BCS-S 

Beyond the Clinic:  

  • Clinical Neuropsychologist Dawn Bowers, PhD, ABPP/CN  

  • Geriatric Psychiatrist Uma Suryadevara, MD  

Primary Care for Atypical Parkinson's: 

  • Movement Disorders Neurologist Nikolaus McFarland, MD    

Please login or register to take this course.

 

To register for this course, or to begin/continue the lesson, please click the "Take Course" button above. 

Instructions for the course will follow.