Self-Care: Making our Caregiving Sustainable
Welcome to the fifth chapter in the course "Team Based Palliative Care Essentials for Parkinson's Disease". In this chapter, participates will learn how to identify burnout and develop practices to build resilience.
Participants will also have the opportunity to try some brief practices that can be used to recover from set-backs and build resilience.
After completing this course, feel free to take a break and come back later or move to the next chapter.
Meet Fred Marshall and Judy Long
Introduction to Self- Care: Making our Caregiving Sustainable
Defining Burnout and Resilience
Settling the Mind
Developing a Regular Practice
Chapter Five Reflection Questions
Chapter Five ★ YOU ARE HERE
Fred Marshall, MD Professor
Departments of Neurology and Medicine University of Rochester
Frederick Marshall, MD attended Swarthmore College where he studied Psychology with minors in Philosophy and Biology before getting his MD from Harvard Medical School and completing his Neurology training at the Harvard Longwood program. He moved to Rochester for an NINDS-funded Fellowship in Experimental Therapeutics of Neurodegenerative Disorders, focusing primarily on Movement Disorders and CognitiveBehavioral Neurology, and has remained there for his career. He is Professor of Neurology and Chief of the Division of Geriatric Neurology at the University of Rochester. Fred also teaches Mindful Practice – a curriculum for clinicians and medical educators combining formal and informal meditation, narrative, and appreciative interviewing to enhance the quality of our care, our caring, and our resilience.
Palliative Care Chaplain and Educator Division of Palliative Medicine
University of California, San Francisco (UCSF)
Judy Long is a palliative care chaplain and educator at the University of California San Francisco (UCSF), where she served on two multi-site studies as chaplain with the neuropalliative care team for people living with advanced Parkinson’s Disease and related disorders. She developed and teaches a live online 8-week course in sustainable caregiving for care partners of those living with neurologic illness and a 6-week resilience course for people with neurologic illness. She contributed two chapters (Spiritual Care and Clinician SelfCare) to the book Neuropalliative Care: a guide to improving the lives of patients and families affected by neurologic disease, CJ Creutzfeldt, BM Kluger, RG Holloway – 2018, developed modules on spiritual care and clinician resilience for EPECNeurology, 2018, and co-developed a module of clinician self-care for the Parkinson’s Foundations Centers of Excellence, 2021. Rev Long also offered presentations on living well with Parkinson’s Disease for the Davis Phinney Foundation and the Parkinson’s Foundation, and on spiritual care for those living with neurologic illness for the Spiritual Care Association. She serves on the education and membership committees of the new International Neuropalliative Care Society and is excited to see the growth of this burgeoning and much needed community of neuropalliative care. Rev Long trained at the University of Maryland, Santa Clara University, and Upaya Institute, where her studies focused on caregiver resilience and her professional thesis focused on clinician resilience. She is an instructor of mindfulness-based compassion and emotional balance interventions and continues to design and deliver curricula for resilience training.
Welcome to the fifth course in your Team-Based Palliative Care journey. This is course five of ten. You can either register for this individual chapter, or for the entire Team-based Palliative Care Essentials course.
Once you register, you can enter this chapter, download the course materials, watch the educational videos, complete the quiz, and move to the next chapter.